Peyton's Progress

Fall and Christmas 2009.



1. Peyton is now moving her right side more; she is pulling up her right leg and moving her right arm alot more.

2. Peyton's right hand was always in a tight fist. Now, it has become more loose and when she is stretching, her fingers are stretched out.

3. Her appetite has increased.

4. She has alot more energy - staying up till 12 midnight for new years! Peyton usually was sleeping by 3-4pm and would sleep till the next morning.

5. Her eye movements are more controlled. We barely see the nastagmus (fast flutter of the eyes) anymore.

6. Her pupils are much more reactive to light and dark. Prior to the treatment, there was very little response.

7. Her seizure activity increased due to the treatment (alot more going on in the brain), and then we have seen an overall reduction. She used to have 2-4 seizures a day, lasting approximately 3-5 minutes (myoclonic type) and now she will have 1 a night - more of a noctural seizure.

8. Prior to Christmas break, Peyton had her first full week of school - not sleeping; participating in school and eating.
Typically, Peyton would be at school for about 2 hours and then be ready for a nap.

9. Peyton is trying to talk soooo hard. She is pushing air to the top moving her mouth to say a word. We know she is close to talking and we are so excited. 

10. Peyton has been able to go to the bathroom (bowel movements) more often without the use of a laxative. Prior to the treatment, Peyton always had to receive laxatives.

11.  Around 830 p.m. on January 7th, Peyton put her left thumb in her mouth and was just moving it around slightly. Then, she started to suck her thumb. This went on for about 10 seconds!! I was overcomed with emotion, went for the camera, after watching and realizing that she was sucking her thumb, only to come back and she stopped and was dozing off. This is truly another sign that those stem cells are working.  Last night on my way home from work, I prayed to God about Peytie and healing her again (as i do several times throughout my day) but I spoke out loud to show me, here, in my reality, if he hears my prayer and can show me that he hears me. He does and he did. An incredible moment for me...much greater than just seeing Peytie suck her thumb.
12. Peyton and her Daddy were having a conversation on March 4th. I would talk to her and she would make her sounds and while doing that, she was using her lips to change the sounds! She would wait for me to stop talking, then she would make her sounds, then I would talk, then she would make sounds. It was so great!
13. Peyton is down to 1 small/slight "episode" a day - sometimes going 1-2 days without one.
   
To sum it up, all of these are small victories for Peyton!
 
We are so greatful for all the support we have continued to receive from friends, family, Mike's co-workers and so many others who have read Peyton's story and donated to her cause.
 
We will work on making sure we update Peyton's progress on a monthly basis. 
Web Hosting Companies